The following communication was sent to me by Dan Ford (friend) who has found a positive expression to a tragic patient medication error suffered upon a family member...I would encourage to contact Dan (information at end of blog posting) to get the original presentation paper.
Regards,
GHC, LLC
Excerpt Begins here:
HISS friends --
The background paper and following messages from Bev Johnson and Jim Conway are from the IHI/Robert Wood Johnson workshop on patient and family-centered care on June 2, Cambridge, MA. More will be forthcoming. Please feel free to submit any comments to Bev or to Jim.
Email addresses are below. This was a very informative and ground-breaking meeting. A wealth of information and ideas were presented and exchanged. This will be a useful resource to others in your orgnization as well.
Submitted by
Dan Ford
Vice President
Furst Group
Phoenix, AZ
Cellular (520) 548-3339
Visit our Web Site at http://www.furstgroup.com
________________________________
Dear Expert Panel Participants:
We were all so delighted to meet with you on June 2nd in Cambridge. We appreciate your thoughtful participation and recommendations. It has been wonderful to hear from so many of you since the meeting.
Attached is an updated copy of the background paper that we shared with you prior to the meeting. We have made some additions, not many. Feel free to share this "work in progress" with colleagues. If you or your colleagues want to offer additional comments or recommendations based on the questions on pages 31-32, please feel free to send them to me, Jim Conway, Susan Edgman-Levitan, or Laurel Simmons.
We are working on a compilation of the visioning statements and issue-specific recommendations and hope to be able to send you a document for review and comment in late July.
Beverley H. Johnson, President/CEO
Institute for Family-Centered Care
7900 Wisconsin Avenue, Suite 405
Bethesda, MD 20814
Phone 301-652-0281 Fax 301-652-0186
Email address: bhjmom@earthlink.net
And.....from Jim Conway:
On June 2, 2006, eighty patients, family members, consumers, clinicians,administrators, regulators, and foundation officials gathered at IHI. They sought to connect a community, develop a common understanding of patient- and family-centered care, and identify an approach for acceleration. The day's outcomes were important and challenging, and many of the concepts and principles that were raised are already informing practice. Key learnings include: conversations are better with the consumer/patient/family present; learning is continual; and the potential for collaboration and acceleration is enormous.
Designing and providing care without patients and families is unacceptable. "Nothing about me, without me."
With support from The Robert Wood Johnson Foundation (RWJF), the effort was led by the Institute for Family-Centered Care in partnership with IHI. Work products already include a background paper and shortly will cover resources to share the learning from the day, and initial steps to develop a change package for use in all IHI programming. Resources will also be developed for RWJF and the broader community. Over the next few weeks we will be assembling the attributes of the vision suggested by the group as well as detailing the responses to the questions posed at the end of the background paper.
For questions or more information, please contact me and we look forward to sharing further updates. Thanks all
P.S. We have also "tripped over" a great new paper on patient centered care in underserved populations commissioned by the Kellogg Foundation.
It can be located at the IHI web site or http://www.esresearch.org/documents_06/Overview.pdf
Jim Conway
Senior Fellow, Institute for Healthcare Improvement [IHI] Senior Consultant, Dana-Farber Cancer Institute [DFCI] Board Chair, Health Care Dimensions Hospice [HCDH]
617-301-4882 [IHI]
617-632-2158 [DFCI and HCDH]
1 comment:
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